Coming Out: Alopecia

Why I think we all require to arrive clean with hair decline and other struggles we experience that cause us pressure.


10 thoughts on “Coming Out: Alopecia

  1. You are very sweet, I am sure your hair will grow back again without you
    even to realize it! That’s what happened to me last August and now I just
    have some funny short hair on the side and back of my head but who cares 🙂
    every person has his/her own story and I personally believe that when you
    stop worrying about it too much about the hair you just make it more…slow
    to grow 😀 of course when I discovered alopecia I was feeling depressed,
    plus, in that period I got my arm broken, so it was pretty hard for me to
    accept everything “with philosophy”, as you do. 🙂 but at some point I
    stopped worrying and I started saying “Hey but if I get bold…I could get
    finally coloured hair! I will buy tousands wigs!” and then my hair started
    to grow, and I was even sorry! 😀
    In this whole story I found in myself a lot of self irony, just like you,
    and that’s why people are not judging you. You look (and for sure you are)
    sincere, you don’t make a tragedy out of it.
    The main thought I had through the whole alopecia period is that there are
    much more serious things in life, I imagined people who have cancer, their
    bold hair during chemiotherapy is the very last of their thoughts…
    Hugs!

  2. I had alopecia for almost year. It started last year around March when my
    mother noticed a dime sized bald spot on my head. At first I just thought
    it was a natural parting of the hair on my head… and from there it all
    went downhill (btw, I was only 17 at the time, a high school senior). I
    went to the doctor and found out it was alopecia. It only got worse before
    it got better, the spot just got bigger and bigger, and although my hair
    was long, I could only cover so much. I used to be known for my cute
    hairstyles, and always wearing my hair down and having it nicely curled,
    but because of the hair loss, I resorted to ponytails and buns. It took a
    huge toll on me psychologically because my hair was the one thing I was
    most confident in about myself, so I felt like that was taken away from me.
    For my high school graduation, I couldn’t style my hair I wanted to,
    neither for my 18th birthday (which was the day before my graduation).
    After all this time,…. my hair is growing back (and nicely thick). There
    is no longer a bald spot and I’m able to wear my hair down again. But my
    alopecia journey was a struggle. All I did was wait, no steroids injected
    into my skull, no wacky remedies, just patience and hope. 

  3. Great perspective, I feel like the hiding of our struggles and our
    perceived weaknesses/flaws is a sort of survival instinct. Like survival of
    the fittest, you know? So, we try to appear as if we are fit even if it is
    not so at that particular time. Kind-sorta. Also, I myself hate to burden
    people or have them worrying about me, even if there is legitimate cause
    for concern :/ 

  4. Thank you for this video. I’m dealing with frontal fibrosing alopecia. I
    can still hide it for the most part, but I’ve been trying to be upfront
    about it. It usually comes up at work when people ask me why I’m
    gluten-free (I’m trying as a last ditch option to slow down the
    progression). Since there isn’t any viable way for me to treat my alopecia,
    talking openly about it gives me some sense of control over something I
    have little control over. 

  5. “It’s okay to not be great.” This video speaks truth about vulnerability
    and courage that is very inspiring. 

  6. Hi, i was wondering if you have ever done some research on alopecia areata
    ‘s connection with celiac disease, which is a severe form of gluten
    intolerance. Please do some research on it and see if a gluten free diet
    gives you any benefits!

  7. Wow this video came to me @ the perfect time. My husband, kids, & my mom
    all know about my hairloss & alopecia but I was just talking to my husband
    about telling his family soon. I was undecided but am tired of trying to
    hide it so I’m gonna tell them & see how it goes. Thanks!

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